💜 Unstoppable: Emma, USA "This year has been a hard one! A hospitalization in August that included a med flight and intubation. Another hospitalization in October that included intubation. A broken elbow in December because mediation side effect include vertigo. A surgery on the elbow and fifty three staples. Another hospitalization the very same day as surgery for seizures, not the surgery. I am pushing hard to get my arm working again and to build strength in my legs and core!" | SCN8A The Cu
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💜 Unstoppable: Emma, USA "This year has been a hard one! A hospi…
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Giving Tuesday is coming up #thecutesyndrome #givingtuesday #ConnerJamesSmith #SCN8A #SCN8Astrong #SCN8Aawareness
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Giving Tuesday is coming up #thecutesyndrome #givingtuesda…
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Addy, USA: #IAmPerfectlyMe This video highlights SCN8A Warrior Addy's amazing bravery, resilience, and sweetness in the face of countless challenges throughout her life. Addy defines herself as strong, proud of herself, loved, and a good friend! #SCN8AAwareness #InternationalSCN8AAwarenessDay #SCN8AStrong #SCN8A #IAm #SCN8AAwareness2025 | SCN8A The Cute Syndrome Foundation
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Addy, USA: #IAmPerfectlyMe This video highlights SCN8A Warrior A…
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A week ago The Cute Syndrome Foundation held our fourth annual SCN8A Clinician, Researcher, and Family Gathering in New Orleans. The event was kicked off by a very special young woman: 15 year old Emma Johnston. As you can see in the video of her keynote address, Emma set exactly the right tone for the Gathering--reminding us all exactly why we were there. And so, we are so pleased to announce Emma's new role with The Cute Syndrome Foundation: our first official SCN8A Youth Ambassador and Patien
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A week ago The Cute Syndrome Foundation held our fourth annua…
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This May, The Cute Syndrome Foundation proudly celebrates 12 years of impact, dedication, and hope. All month long, we’re spotlighting the groundbreaking research made possible by TCSF Grant recipients. Their work brings us closer to a brighter future for those affected by SCN8A. Want to be part of the progress? Support projects like these by donating at givebutter.com/tcsf12. ________________________________ 🔬 In this video, Dr. Chris Dulla and Dr. Madeleine Oudin of Tufts University discuss t
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This May, The Cute Syndrome Foundation proudly celebrates 12 …
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SCN8A families, are you ready to make your mark? The Cute Syndr…
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This year, our awareness theme is two simple, short, yet powerful wo…
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#IfYouOnlyKnew…This year's International SCN8A Awareness D…
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Check out Blake showing off his skills in PE class at school! Inclus…
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A holiday greeting for Kacie Craig, TCSF executive director, and her …
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Happy Mother’s Day to the incredible moms in the SCN8A co…
649 views10 months ago
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Our final Meaningful Change session of 2024 was the most diffi…
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Kiya, USA: #IAmAnSCN8AWarrior I am Kiya and I’m 10 years old. I a…
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There's an extra special bond between the SCN8A warriors and …
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Last weekend was another Cute Connections event in Branson, M…
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George, England: #IAmUnstoppable George is an unstoppable force. D…
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💜 Unstoppable: Wade, USA "Wade never gives up. He may move a litt…
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Stella, USA: #IAmSassy Stella is such a sweet soul, but I love whe…
2K viewsFeb 22, 2025
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What is Palliative Care, Really? TCSF chatted with Maria Hopfgart…
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The Cutie Chronicles Chapter 12 Addy (Adelaide and Her Fight wit…
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💜 February 9th we celebrate International SCN8A Awareness D…
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International SCN8A Awareness Day is February 9th! This year, our aw…
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Announcing the 2026 International SCN8A Awareness Day theme: UN…
871 views2 months ago
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2026 International SCN8A Awareness Day
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